It's a beautiful day in Milwaukee. The sun is shining and it's 63 degrees. Perfect, gorgeous!
Of course, I can't be out in it because of my photosensitivity. And even though I'm indoors, I'm still pretty bundled. I'm wearing jeans, heavy socks, t-shirt, long sleeved cardigan and scarf. I haven't had any hives today, and I'm not wearing long underwear, so there's still plenty to celebrate.
But this wonderful spring day has made me so hopeful about my future. With my new worm friends making their way through my blood stream, I'm letting myself tentatively consider life without some of my ailments. It seems so unreal to me that this is a possibility. Maybe by next spring, I'll be able to go outside on the first sunny day of the year and enjoy the breeze.
Other things I'm looking forward to…
I'm at the beginning of a journey. Is it even possible that all of these little dreams could come true? My fingers are crossed.
Of course, I can't be out in it because of my photosensitivity. And even though I'm indoors, I'm still pretty bundled. I'm wearing jeans, heavy socks, t-shirt, long sleeved cardigan and scarf. I haven't had any hives today, and I'm not wearing long underwear, so there's still plenty to celebrate.
But this wonderful spring day has made me so hopeful about my future. With my new worm friends making their way through my blood stream, I'm letting myself tentatively consider life without some of my ailments. It seems so unreal to me that this is a possibility. Maybe by next spring, I'll be able to go outside on the first sunny day of the year and enjoy the breeze.
Other things I'm looking forward to…
- Returning to birth work! I don't know what path I'll take, but I know that where I belong.
- Not living in a body that is constantly racked with pain.
- Having a pretty good idea how I'm going to feel from day to day.
- Getting my real voice back. And with that - being able to sing loud in the car with my kids.
- Being the strongest mama around again. (At this point, I'd settle for being the fourth or fifth strongest.)
- Wearing cute shoes! (I've been rocking Sanitas for years, and I'd just like a little variety!)
- Not dropping things. All. The. Time.
- Remembering my words. Remembering what I'm doing. Remembering everything.
- Not having a rash on my face all the time.
- Having a glass of wine with my family. Maybe even having two!
- Wearing make-up when I want to, without itching and burning, and without inflaming my rash.
- The end of involuntary napping! I hate falling asleep in the middle of everything and waking up disoriented.
I'm at the beginning of a journey. Is it even possible that all of these little dreams could come true? My fingers are crossed.